Deepa six years ago |
One of my personal motivation to revisit Kolkata is around
twelve years old. Her name is
Deepa. She is the feature of much of
this blog, named after her and her ability to open my eyes to more of the
world. Eyes which she was born without. Over the years that I worked with Deepa, I
was convinced that any signs of autism she showed were a result of her living
conditions. Deepa has spent the majority
of her life in one room, filled with children with various states of physical
and mental challenges. Years ago I
taught her how to walk on her own, how to feed herself and then how to
speak. This later skill was one that
appeared to be deeply hidden, yet it was potentially her main ally in the world
– her ability to connect when she was unable to see and at that point unable to
be heard. I had such an admiration for
Deepa and connection that went beyond that of care-giver and child that I even looked
into the viability of adopting her. At
that point I was told it would take minimum of three years but most likely
five. My hope had been to adopt her in order to find
her a specialist school that would be able to cater to her needs and provide
the conditions necessary to prevent her from moving further along the autism
spectrum. Yet three to five years was
too long to wait. She needed expert help
immediately. And with a heavy heart I
whispered good bye not sure when or if I would see her again.
Today I made that return journey to Sisha Bhavan
orphanage. I walked down the familiar
street, filled with butchers shops that spill out onto the invisible pavements,
fruit wallahs, shoe wallahs, mosques and rickshaws. Walking down these roads is a little like
surfing. You need to be continuously
aware of what is going on all around you, predicting the trajectory and timing
of people, rickshaws, bicycles, motorbikes and cars and find a way to flow
between them. The impact on the senses is extreme. The continuous noise battery my nervous
system and I wonder if the whole of Kolkata does actually smell like a urinal.
I arrived at the huge
metal gate of the orphanage and banged at the door. One of the massi’s (Indian worker)
opened it and grinned. She has
been there for years. She motioned me to
come in and said “Deepa - up” and pointed to the staircase. Just like I do with Kolkata, I have always
had a love/hate relationship with the massi’s. Their harsh ways and words to the kids bordered
on physical and verbal abuse. And many
times I couldn’t sit back and watch, and it was my persistent intervention
which threatened to terminate my work at the orphanage.
Yet in order to understand the dominant attitude of
violence, its always necessary to look beneath the surface. Just like the CEO bully’s his staff, who go
home and bully their wives, who then shout at the children, who then kick the
dog. The women here who are employed to
take care of the children are all from the lower castes. They have become toughened by life and after
some time of observing their own interactions, occasions of kindness were
rare. Many times I wondered to what
extent kindness is something which is innate or which is learned. Or indeed in which cases kindness can be perceived
as a weakness, threatening one’s own survival.
Or perhaps what I perceived as cruelty was just an efficient way to get
a very poorly paid job done. Regardless of
my relationship or view of the Indian staff, ultimately they work with the kids
for life. Foreign volunteers, like
myself, come in for a few weeks or months, maybe a year and then we leave. We can.
Therefore we do. In the interim
we either turn a blind eye to what we find uncomfortable or speak out but are
unprepared to step up and do the work of these warrior women. Women who are battling caste, gender, poverty
and Kali only knows what else.
I took the stairs up to the room on the second floor. It’s filled with small cots where the
children spend a majority of their time.
Sometimes tied to the rails with cloths, other times they are laid on
mats on the floor, where the massis
and volunteers give massages to limber their crooked limbs. I scanned the room. The same kids were there. Six years later and some hardly looked any
different – almost as if they are in some kind of perverted Never Ever land. A place where time pauses. Deepa was in the corner. Same pudding bowl hair cut. She had grown taller. Clearly still not potty
trained as her pants were dripping wet.
I went over and crouched next to where she stood. She had her hands over her ears. For such a sensitive blind child the noise of
the room must at times be overwhelming. I
spoke to her and half hoped for a response.
Had she found her voice yet? But she continued as she was. Without registering my presence. Totally inside her own world – whatever that
must look like. I couldn’t even bring
myself to reach out and touch her, or to change her clothes. The love I have for her is so strong. The pain at seeing her spiral deeper into
autism as equally as strong. I told her
I love her. That she is amazing. And then moved away.
I feel on some level I was Deepa’s only chance of learning
vital life skills. On another, it is
impossible to predict the extent to which her life circumstances have
accentuated her condition, or what is simply playing out through her genes. I saw other children who were babies when I
last left, also born without eyes and also displaying strong signs of autism.
Either way, Deepa is a light in a very
dark place. And with a heavy heart I
will always be grateful for the chance to have shared the time that I did with
her. She has been an amazing teacher in
how she sees and feels the world. After
going to greet the other kids, reading a story book with the girl with the most amazing smile and pulling two little boys
who had rolled onto the concrete floor back onto the mat, I knew my time here
has passed. This is not my path any
more. Part of me is amazed at what I did do. And I admire those who are able to
be here now. A place where there appears
to be so little hope and so few rewards.
I picked up my bag, waved an invisible goodbye to Deepa, who was still
standing in the corner, hands over her ears, and oblivious to all.
Later that night I messaged my sister who was eager to hear
the news of Deepa. “I feel like I’ve failed” I told her. She replied: “There is nothing you can do
anymore. Just let it go.”
1 comment:
Thank you sister. It takes so much strength to let go in times. And what we are letting go of isn't the person or love, it is the attachment to wanting things to be different than they are. She is as she is. You are so strong to be in loving acceptance of this. Thank you for doing the global work that you do. I love you
Post a Comment